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On the surface, James was a very typical eight year old. But what made James not so typical was that he had terminal cancer. It's called neuroblastoma and it is a cancer of the central nervous system. James had been through many surgeries, cardiac arrest, endless chemotherapy, radiation, bone marrow transplant, CT scans, MRI's, two Phase One Clinical Trials, many MIBG's, and of course countless needles and pokes. He had been on morphine many times in an attempt to control excruciating pain, and had lost his hair four times. He could pronounce, and understood, the names and consequences of each of his treatments and, when in the hospital, carefully scrutinized every medical intervention. The other reason that James was not so typical is that he was surviving the neuroblastoma onslaught.
James had an amazing way of relating to people. But then he has packed more living into seven years than many of us do into a lifetime. The reflections he shared and the questions he asked, make you realize James was a child who had already completed more spiritual growth than many adults have dreamed of. James loved to talk to people and would talk to any adult without any shyness. And that's a good thing. Because James had spoken with Mr. Dressup, Fred Penner, Tom Hanks, Chris Hadfield the astronaut, the Kratt brothers from the TV show Zoboomafoo, and had managed to keep each of them captivated with his conversation. We also hope that James' story will inspire you to help all children who fight this merciless disease. Years ago the mortality rate for childhood leukemia was 85%, but after throwing a lot of money into research, leukemia now has an 85% survival rate. Only by raising both awareness and funds, will it be possible to offer children with neuroblastoma the same hope for survival.
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